Preferences regarding Disclosure of Risk for Parkinson's Disease in a Population-based Study.

ABSTRACT:

Background

Preferences for risk disclosure in population-based studies assessing Parkinson's disease (PD) risk have not been assessed so far.

Objectives

To examine preferences for risk disclosure in a subset of the European Healthy Brain Aging (HeBA) multicenter study.

Methods

After a remote PD risk assessment, a structured pilot-questionnaire on risk disclosure was first presented to participants (≥50 years, without neurodegenerative diseases) during in-person visits at the Innsbruck study site.

Results

From the included 81 participants (63% females, median age 65 years), 79% expressed an unconditional desire to be informed about their PD risk. Confronted with a hypothetical scenario of a positive, specific PD test, most would try to live a healthier lifestyle

SUBMITTER: Mahlknecht P 

PROVIDER: S-EPMC11802623 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature