Decision-making and role preferences for receiving individual pharmacogenomic research results among participants at a Ugandan HIV research institute.

ABSTRACT: Little is known about how people living with HIV should be engaged in the decision-making process for returning individual pharmacogenomic research results. This study explored the role people living with HIV want to play in making decisions about whether and how individual results of pharmacogenomic research should be presented to them. A convergent parallel mixed methods study was conducted, comprising a survey of 221 research participants and five deliberative focus group discussions with 30 purposively selected research participants. Most participants (122, 55.2%) preferred the collaborative role, 67 (30.3%) preferred the active role and 32 (14.5%) preferred the passive role. Factors that significantly influenced preference for an active role compared with a collaborative role were mar

SUBMITTER: Nabukenya S 

PROVIDER: S-EPMC11806758 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature