Validation of the Food Safe Zone questionnaire for families of individuals with Prader-Willi syndrome.

ABSTRACT:

Background

Prader-Willi syndrome (PWS), a genetic neurodevelopmental disorder, is characterized by hyperphagia and significant behavioral problems. Hyperphagic individuals with PWS are chronically hungry yet rarely feel sated, and often engage in food-seeking behaviors. To avoid life-threatening obesity in their children, families implement food security strategies (e.g., locking food sources, constant supervision around food, alerting others). Although widely used, these strategies have yet to be systematically examined. We thus developed and analyzed the psychometric properties of a new measure of these diverse strategies, the Food Safe Zone, and evaluated them in relation to hyperphagic symptoms and demographic variables. In doing so, we also shine a light on the extraordinary e

SUBMITTER: Dykens EM 

PROVIDER: S-EPMC11806870 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature