Opportunities for meaningful inclusion: experience of individuals with intellectual and developmental disabilities with research.

ABSTRACT:

Background

Individuals with intellectual and developmental disabilities (IDD) face numerous health disparities, particularly in rural communities. However, they are rarely included in the research process to address these challenges as co-researchers. Little is known about the experience of how individuals with disabilities participate as co-researchers, or the barriers they face.

Objective

The current study explores the experiences of individuals with IDD as co-researchers through discussions with individuals with IDD themselves, those who support them, and disability researchers.

Method

Data were collected through focus groups with individuals with IDD, individuals who support those with IDD, and disability researchers. Each group was asked about their journey throu

SUBMITTER: Dudley A 

PROVIDER: S-EPMC11813933 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature