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Outcome measurement in functional neurological disorder: A qualitative study on the views of patients, caregivers and healthcare professionals.


ABSTRACT:

Background

In this qualitative study, we aimed to obtain and synthesise the views of patients with functional neurological disorder (FND), their caregivers, and relevant healthcare professionals (HCPs) on outcome measurement in FND.

Methods

Semi-structured interviews were conducted with 22 FND patients, 18 caregivers and 21 HCPs, sampled purposively in the United Kingdom. Transcripts were analysed through inductive thematic analysis.

Results

Whilst reduction or resolution of FND symptoms were frequently mentioned as important treatment goals in all groups, this was reported by a larger proportion of caregivers and HCPs than patients. Patients most frequently hoped for improvements in mental health/well-being. Other important treatment goals were resuming work, and an

SUBMITTER: Rutten S 

PROVIDER: S-EPMC11814038 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature