Reporting community involvement in autism research: Findings from the journal Autism.

ABSTRACT:

Lay abstract

There has been a growing push for the Autistic and autism communities to be more actively involved in autism research. From January 2021, the journal Autism made it a rule for authors to report whether they involved community members in their work; and if they did, how they had done so. In this study, we wanted to see how this new rule has changed things. Our team of Autistic and non-autistic researchers read all 283 articles published in Autism in 2019, about 2 years before the rule was in place, and in 2022, about 1 year after. We recorded what each article was about and how the community was involved. We found there was an increase in how often articles talked about community involvement - from about 10% before the rule to over 50% after. Most of these

SUBMITTER: Tan DW 

PROVIDER: S-EPMC11816470 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature