Experiences of family caregivers of children living with thalassaemia-major in Karachi: a phenomenological study.

ABSTRACT:

Introduction

Thalassaemia major, a global health burden, presents a growing challenge in Pakistan's strained healthcare system. This study explores how caregivers of children with beta-thalassaemia major navigate healthcare services, aiming to identify facilitators and barriers to accessing optimal care.

Methods

A qualitative interpretative phenomenological approach was employed. In-depth interviews with 18 purposively sampled caregivers from Karachi thalassaemia centres were conducted. Thematic analysis using a combined inductive-deductive approach identified themes within the interview data.

Result

The study revealed significant challenges for caregivers at individual, interpersonal and organisational levels. Lack of awareness about carrier states, limited di

SUBMITTER: Baqar M 

PROVIDER: S-EPMC11816845 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature