Patient-Generated Collections for Organizing Electronic Health Record Data to Elevate Personal Meaning, Improve Actionability, and Support Patient-Health Care Provider Communication: Think-Aloud Evaluation Study.

ABSTRACT:

Background

Through third party applications, patients in the United States have access to their electronic health record (EHR) data from multiple health care providers. However, these applications offer only a predefined organization of these records by type, time stamp, or provider, leaving out meaningful connections between them. This prevents patients from efficiently reviewing, exploring, and making sense of their EHR data based on current or ongoing health issues. The lack of personalized organization and important connections can limit patients' ability to use their data and make informed health decisions.

Objective

To address these challenges, we created Discovery, an experimental app that enables patients to organize their medical records into collections, analogous

SUBMITTER: Nakikj D 

PROVIDER: S-EPMC11833264 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature