People With Dementia Disclosing Their Diagnosis to Social Networks: A Systematic Review and Meta-Synthesis.

ABSTRACT:

Background and objectives

Given the stigma of dementia, individuals with the condition may be wary to disclose their diagnosis to other people, both in face-to-face and digital settings. While sharing one's dementia diagnosis with others is essential for accessing valuable support for social, cognitive, and physical well-being, this area of research has largely been neglected. In this meta-synthesis, we aimed to systematically review qualitative research on the factors associated with online and offline self-disclosure in people with dementia.

Research design and methods

We conducted a systematic search in 6 electronic databases. Inclusion criteria comprised qualitative and mixed-methods studies describing experiences with self-disclosure in people with any type of dementia.

SUBMITTER: Kohl G 

PROVIDER: S-EPMC11833486 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature