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Dataset Information

The Value of Advance Care Planning for Spokespersons of Patients With Advanced Illness.


ABSTRACT:

Context

Advance Care Planning (ACP) has fallen under scrutiny primarily because research has not consistently demonstrated patient-focused benefits.

Objectives

To better understand how spokespersons regard, engage with, and find value in ACP during decision-making for their loved ones.

Methods

This qualitative analysis was part of a randomized controlled trial involving spokespersons of patients with advanced illness who had completed ACP. After making a medical decision on behalf of their loved one (or that loved one's death), semi-structured interviews explored spokespersons' experience of decision-making and if (and how) ACP played a role. Thematic analysis was conducted on interview transcripts.

Results

From 120 interviews, five themes emerged: 1) Written a

SUBMITTER: Kunzler BR 

PROVIDER: S-EPMC11841931 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature