The impact of systemic sclerosis on women's health evaluated with an ad hoc-developed patient-reported questionnaire.

ABSTRACT:

Objective

The impact of disease on women's health-related quality of life has become increasingly important in patients with rheumatic diseases (RDs). Systemic sclerosis (SSc) mostly affects women with a broad spectrum of clinical presentations and severity, and a variable impact on daily living. The objective of the present study was to specifically address "women's health" in systemic sclerosis patients through a dedicated questionnaire.

Methods

An anonymous self-reported questionnaire (only in Italian) was developed in collaboration with obstetricians and gynecologists and subsequently revised and approved by five patient representatives. The questionnaire was administered to SSc patients during scheduled visits in an outpatient Rheumatology SSc Clinic.

Results

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SUBMITTER: Lazzaroni MG 

PROVIDER: S-EPMC11851595 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature