Complexity of developing a nationwide model for a dementia registry in Egypt: A qualitative study.

ABSTRACT:

Introduction

The increased interest in evidence-based medicine has led to the emergence of disease registries worldwide to help tackle the impact of chronic diseases. A national dementia registry in Egypt would provide a valuable source of patient data that will significantly advance the disease management strategies, quality of patient care, and impact health policy- and decision making.

Methods

This study investigates the complexity of creating a disease registry for dementia in Egypt by interviewing 24 experts to provide recommendations for the most appropriate registry model to be developed.

Results

Several core themes emerged from the analysis discussing many points that should direct the creation of any registry in Egypt in terms of functionality, planning, comp

SUBMITTER: Heikal SA 

PROVIDER: S-EPMC11863355 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature