Caregiver experiences and needs in pediatric rheumatic disease: a mixed-methods systematic review protocol.

ABSTRACT:

Introduction

Understanding the genuine experiences and requirements of caregivers and implementing targeted interventions can have a positive impact on the physical and mental well-being of caregivers with children diagnosed with rheumatic diseases, ultimately reducing their burden and enhancing their quality of life. While there has been a gradual increase in research in this area in recent years, there remains a gap in the evidence that comprehensively and systematically reflects the actual experiences and needs of caregivers. We will employ a mixed-methods approach to evaluate the real-life experiences and requirements of caregivers for children diagnosed with rheumatic diseases to provide insights for both research and clinical interventions. METHODS AND ANALYSIS: All types of

SUBMITTER: Xiang Y 

PROVIDER: S-EPMC11863848 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature