End of life care in paediatric settings: UK national survey.

ABSTRACT:

Objectives

To describe end of life care in settings where, in the UK, most children die; to explore commonalities and differences within and between settings; and to test whether there are distinct, alternative models of end of life care.

Methods

An online survey of UK neonatal units (NNUs), paediatric intensive care units (PICUs) and children/young people's cancer principal treatment centres (PTCs) collected data on aspects of service organisation, delivery and practice relevant to end of life outcomes or experiences (referred to as the core elements of end of life care) across three domains: care of the child, care of the parent and bereavement care.

Results

91 units/centres returned a survey (37% response rate). There was variation within and between settings in te

SUBMITTER: Bedendo A 

PROVIDER: S-EPMC11874335 | biostudies-literature | 2025 Feb

REPOSITORIES: biostudies-literature