Hidden stories of caregivers with children living with sickle cell disease in Uganda: Experiences, coping strategies and outcomes.

ABSTRACT:

Background

Sickle Cell Disease (SCD) poses a substantial public health challenge in Uganda, exhibiting distinct regional variations in prevalence. The Uganda Sickle Cell Surveillance Study has estimated an overall SCD prevalence of 13.3%. Notably, this prevalence varies significantly across the country's regions, reaching its highest in the northern region at 22.2% and it's lowest in the central region at 5.3%. This variation reflects the diverse impact of SCD and underscores the need for a comprehensive understanding of its regional implications. SCD places substantial physical, social, and psychological burdens on caregivers, potentially leading to heightened parental stress. However, limited research has focused on the daily challenges and experiences of SCD caregivers, despite

SUBMITTER: Alinda I 

PROVIDER: S-EPMC11875354 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature