Long-term durability between parent and child patient-reported outcomes in eosinophilic esophagitis.

ABSTRACT:

Background

Because young children cannot self-report symptoms, there is a need for parent surrogate reports. Although early work suggested parent-child alignment for eosinophil esophagitis (EoE) patient-reported outcomes (PROs), the longitudinal alignment is unclear.

Objective

We sought to assess the agreement and longitudinal stability of PROs between children with EoE and their parents.

Methods

A total of 292 parent-child respondents completed 723 questionnaires over 5 years in an observational trial in the Consortium of Eosinophilic Gastrointestinal Disease Researchers. The change in and agreement between parent and child Pediatric Eosinophilic Esophagitis Symptom Score version 2 (PEESSv2.0) and Pediatric Quality of Life Eosinophilic Esophagitis Module (PedsQL-EoE)

SUBMITTER: Martin LJ 

PROVIDER: S-EPMC11879065 | biostudies-literature | 2024 Nov

REPOSITORIES: biostudies-literature