Bridging the gap: empowering patients as research partners through a structured training program.

ABSTRACT:

Background

Engaging patients as partners in the research process is a mutually beneficial endeavor. However, patients may need skills training in order to meaningfully contribute to a project. The present paper describes the training program "A Front Row SEAT to Research," which equipped patient partners to independently lead focus groups and interpret their associated data. The focus groups were an aim of a larger project evaluating the face validity of a scale measuring patient engagement in research.

Main body

The nine-week training program, created by Patient Engaged Research Center qualitative research experts, empowered patient partners to conduct qualitative research. The structure of the program included asynchronous video lessons, workbook exercises, and live sessio

SUBMITTER: Redding A 

PROVIDER: S-EPMC11881312 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature