The use and experience of the national disability insurance scheme for Australians with skeletal dysplasia: a mixed-methods study.

ABSTRACT:

Background

Skeletal dysplasias are rare disorders affecting bone growth and development that impact functional performance. In Australia, the National Disability Insurance Scheme (NDIS) was rolled out in 2016 to support individuals with disabilities access reasonable and necessary supports to promote independence and quality of life. Anecdotally, Australians with skeletal dysplasias report challenges with accessing and using the NDIS but this has not previously been reported in the literature. Therefore, this study aims to explore the use and experience of NDIS for Australians with skeletal dysplasias.

Methods

This is a cross-sectional, mixed-methods study. Eligible participants included adults and children (represented by their parents) with skeletal dysplasias, irrespectiv

SUBMITTER: Lai JHJ 

PROVIDER: S-EPMC11883912 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature