Risks and Safeguards in Social-Behavioural Research With Adults With Developmental Disabilities: A Qualitative Systematic Review.

ABSTRACT:

Background

We identified participant-level risks and safeguards in social-behavioural research with adults with developmental disabilities.

Method

We conducted a qualitative systematic review on risks and safeguards in peer-reviewed research with adults with developmental disabilities. We identified research reporting on risks and safeguards published between 2009 and 2023 by searching eight databases and conducting hand searches of reference lists. We conducted thematic analysis using independent data extraction and coding, and investigator triangulation.

Results

From 23 manuscripts, we identified: (1) risks associated with research participation of adults with developmental disabilities (e.g., physical, relational, psychological, and social risks as well as a loss o

SUBMITTER: McDonald K 

PROVIDER: S-EPMC11886930 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature