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Dataset Information

Parent-identified intrinsic and extrinsic factors that influence performance across developmental domains and participation in their communities.


ABSTRACT: Children with neurodevelopmental disabilities living in rural and low-resourced regions within the United States, such as Appalachia, face gaps and barriers to accessing healthcare services due to a shortage of providers, specialists, hospitals, and clinics. Without access to specialized medical and rehabilitation services, their performance across developmental domains and participation within their communities is likely suboptimal. The purpose of this study was to identify both intrinsic and extrinsic factors using a mixed-methods approach to better understand factors that may impact performance across developmental domains and participation for children with disabilities living in Appalachia. Parents completed one study visit in which they completed a total of 4 surveys and a semi-struc

SUBMITTER: Bican R 

PROVIDER: S-EPMC11891180 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature