Epidemiology of idiopathic pulmonary fibrosis in central and Western Pennsylvania.

ABSTRACT:

Background/rationale

Idiopathic Pulmonary Fibrosis (IPF) is a chronic, progressive disease of unknown origin. Establishing the epidemiology of IPF has been challenging due to diagnostic complexity, poor survival, low prevalence, and heterogeneity of ascertainment methodologies.

Objectives

This research aimed to estimate the rates of IPF in central and western Pennsylvania and to pilot the use of capture recapture (CR) methods to estimate the disease incidence.

Methods

We identified adults ≥ 30 years old diagnosed with IPF (by ICD-9/10 coding) between 2013 to 2021 from two health systems (UPMC Health System and Penn State Health) participating in the PaTH Clinical Research Network. We extracted information on patients' sex, race, date of birth and 3-digit zip code from

SUBMITTER: Linkov F 

PROVIDER: S-EPMC11895235 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature