Co-Authoring and Reporting on Lived Experience Engagement in Mental Health and/or Substance Research: A Qualitative Study and Guidance Document.

ABSTRACT:

Introduction

There is a move towards engaging people with lived experience and families (PWLE/F)-also referred to as PWLE/F engagement-in mental health and/or substance use research. However, PWLE/F engagement is inadequately reported on in mental health and/or substance use research papers.

Objective

To understand what PWLE/F and researchers perceive are important components to report on related to engagement in mental health and/or substance use research.

Methods

This study included a qualitative description study underpinned by pragmatism. Data were collected through virtual interviews with 13 PWLE/F and 12 researchers across Canada and analysed using template analysis. The results were used to develop a reporting guidance document for engagement in mental health a

SUBMITTER: Sheikhan NY 

PROVIDER: S-EPMC11898218 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature