Experiences and challenges of people with multiple sclerosis and low attendance to clinical follow-up: a qualitative study.

ABSTRACT:

Background

Many people with Multiple Sclerosis (MS) in Europe face limited treatment and care access. Research on the challenges faced by people who do not access specialized MS care and treatment is limited, leaving a gap in understanding the experiences and challenges of those who do not attend specialized care. Thus, we aimed to explore the experiences of people with MS who do not attend regular clinical follow-up in specialized MS clinics in Denmark, with a special focus on self-care.

Methods

A qualitative study was conducted using individual interviews and thematic analysis, following Braun and Clarke's approach. Data were collected in Denmark between September 2022 and February 2024 through semi-structured interviews, guided by the interview guide development principle

SUBMITTER: Beczek A 

PROVIDER: S-EPMC11905644 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature