Consent mechanisms and default effects in health information exchange in Japan.

ABSTRACT:

Background

Health information exchange (HIE) is an information system that efficiently shares patient information across medical institutions. However, traditional consent methods, represented by opt-in and opt-out, face a trade-off between efficiency and ethical, making it difficult to fundamentally improve consent rates. To address this issue, we focused on default settings and proposed an innovative approach called the "two-step consent model," which leverages the advantages of existing models using utility theory. We evaluated the acceptability of this method.

Methods

An online survey was conducted with 2,000 participants registered with Japan's largest internet survey company. We compared and analyzed the consent rates of the opt-in, opt-out, and two-step consent models

SUBMITTER: Ito A 

PROVIDER: S-EPMC11908376 | biostudies-literature | 2025

REPOSITORIES: biostudies-literature