Closing the gap in kidney disease: validating the reporting of Aboriginal and/or Torres Strait Islander identification in a clinical quality registry using linked data.

ABSTRACT:

Objective

To examine the accuracy of the Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), the population-based clinical quality registry for people with kidney failure, in identifying Aboriginal and/or Torres Strait Islander people.

Design

Population-based cohort study of reporting accuracy.

Setting

New South Wales, 2006-2020.

Participants

Incident kidney failure patients.

Main outcome measures

Sensitivity and specificity of identification of Aboriginal and/or Torres Strait Islander people in ANZDATA compared with identification with Enhanced Reporting of Aboriginality (ERA) methods using linked health datasets.

Results

Of 11 708 patients, 693 (5.9%) were identified as Aboriginal and/or Torres Strait Islander people using ERA

SUBMITTER: Baldwin HJ 

PROVIDER: S-EPMC11910948 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature