Korean Cerebral Palsy Registry (KCPR): study rationale and protocol of a multicentre prospective cohort study.

ABSTRACT:

Introduction

Cerebral palsy (CP) is a leading cause of motor developmental disability in children. Generating epidemiological data on CP could enable early diagnosis, intervention and translational research. We aim to establish a Korean network and online data repository for CP called the Korean Cerebral Palsy Registry (KCPR).

Methods and analysis

The KCPR is a nationwide, multicentre, prospective cohort study designed to conduct a 20-year longitudinal follow-up of children with CP. Institution-based surveillance involving 42 institutions across the country will be used for the registration of children with CP aged less than 7 years to participate in KCPR. The data collection form of the KCPR will comprise diagnostic information, risk factors, extent of disability, genetic d

SUBMITTER: Hong J 

PROVIDER: S-EPMC11911677 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature