Examining BRCA Previvors' Social Media Content Creation as a Form of Self and Community Care: Qualitative Interview Study.

ABSTRACT:

Background

Genetic testing has become a common way of identifying a woman's risk of developing hereditary breast and ovarian cancer; however, not all medical providers have the necessary information to support patients interested in genetic testing, nor do they always have the proper information for patients once they have been diagnosed. Therefore, many "previvors"-the name given to those who have tested positive for the BRCA genetic mutation-have taken to social media to inform others about the importance of genetic testing and explain to them how to understand their test results. Historically, those desiring to speak about their medical issues online have sought out structured support groups or chat rooms; however, many previvors today are instead posting on their own personal s

SUBMITTER: Wellman ML 

PROVIDER: S-EPMC11914846 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature