Cross-border data sharing for research in Africa: an analysis of the data protection and research ethics requirements in 12 jurisdictions.

ABSTRACT:

Background

In recent years, there has been a notable uptake in genomic and health-related research activities across the African continent. Similarly, there has been increased introduction of data protection legislation that affects the sharing of personal data, such as health data and genomic data, including for research. Many of these statutes have stricter requirements when sharing personal data across borders. Consequently, the cross-border sharing of health data, that includes genetic data, requires careful navigation of the pertinent data protection legislation, in particular concerning the sharing of such data for research purposes. To help researchers navigate these legal frameworks, 12 African countries were analysed to develop country guides on cross-border data sharing.<

SUBMITTER: Staunton C 

PROVIDER: S-EPMC11921095 | biostudies-literature | 2025 Jan-Jun

REPOSITORIES: biostudies-literature