Towards a trusted genomics repository: Identifying commercialisation fears and preferred forms of governance across segments of the community.

ABSTRACT: A latent class analysis on a nationally representative Australian sample (N = 1000) identified four subgroups (i.e. classes), ranging from high to low concern about, and willingness to donate to, a national genomic repository under different forms of public and commercial management and access. The distribution of concerns and governance preferences across these classes was investigated. This added to previous research by indicating the degree to which extant concerns (e.g. corporate profiteering, discrimination by insurers) are held by different segments of the community. Based on the governance mechanisms that had widespread support across segments, the following recommendations are made to develop a trusted Australian genomic repository: the repository cannot be solely profit-dri

SUBMITTER: Elphinstone B 

PROVIDER: S-EPMC11927022 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature