The Importance of Lived Experience: A Scoping Review on the Value of Patient and Public Involvement in Health Research.

ABSTRACT:

Background

Recently, patient and public involvement (PPI) in research has gained significant attention, particularly within the United Kingdom. Although there has been a growing focus on the impact of PPI on research outcomes, there remains an important gap in understanding its effects on the individuals involved and the value they gain from their participation.

Objective

This scoping review aims to critically examine how PPI benefits both people with lived experience and researchers, shedding light on the value of their involvement in shaping research.

Methods

We searched MEDLINE, PsycINFO, EMBASE, Cochrane and Web of Science for full-text articles published in English after 1996. Grey literature searches reviewed policies from international research funders and pati

SUBMITTER: Mah H 

PROVIDER: S-EPMC11938292 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature