Health-related quality of life in children with bronchopulmonary dysplasia: examining agreement between child self-report and parent proxy.
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ABSTRACT: Premature children with bronchopulmonary dysplasia (BPD) encounter several health issues potentially affecting their health-related quality of life (HRQL). We aimed to determine agreement between children with BPD and their parent's HRQL assessments. Using Patient-Reported Outcomes Measurement Information System (PROMIS) assessment tools, we evaluated agreement and potential bias between parent proxy and child self-reports of the PROMIS-Scale-Global Health-7, the Psychological Stress Experiences Short Form (PSE), and the PROMIS-Profile-25. Fifty-eight child-parent dyads from the Indoor Air Quality and Respiratory Morbidity in Children with BPD study were included. Intraclass correlations (ICC) between child self-report and parent proxy report showed moderate agreement for the Relationships
SUBMITTER: Moreno-Galarraga L
PROVIDER: S-EPMC11939004 | biostudies-literature | 2024 Nov
REPOSITORIES: biostudies-literature
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