Navigating the disclosure landscape: Parents' perspectives on healthcare professionals' role in supporting intersex children and families.

ABSTRACT: Intersex, an umbrella term, describes individuals with sex characteristics that cannot be exclusively categorized into binary definitions of male or female. The intersex community faces a lack of social visibility perpetuated by a history of medical discrimination and pathologization shaped by "normalizing" genital surgeries without the child's consent. Despite efforts to reform clinical practice, there remains a paucity of research centering the needs of the intersex community and their families. This study explored parents' perspectives on how healthcare professionals (HCPs), such as genetics professionals, can provide patient-centered education and support when parents first learn of their child's intersex variation, with the aim of offering recommendations to HCPs to promote parental a

SUBMITTER: Horowitz K 

PROVIDER: S-EPMC11953585 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature