Social media to understand the endometriosis patient journey: Listening to influences driving treatment choices.

ABSTRACT:

Background

Previous research has identified treatment attributes and outcomes for endometriosis patients, highlighting the need for tailored interventions to improve patient care. These studies emphasize the need to understand patient experiences, focusing on pain symptoms and factors that impact quality of life.

Objectives

This study aimed to provide an in-depth description of patient experiences with endometriosis related to treatment attributes and outcomes, including three key types of pain symptoms: Non-menstrual pelvic pain, dyspareunia, and dysmenorrhea, and non-pain factors such as out-of-pocket costs.

Design

In this retrospective qualitative study, 47,745 public social media posts from the United States from December 2021 to December 2022 were analyzed.

Me

SUBMITTER: Britton V 

PROVIDER: S-EPMC11956510 | biostudies-literature | 2025 Jan-Dec

REPOSITORIES: biostudies-literature