Methods for Involving People With Dementia in Health Policy and Guideline Development: A Scoping Review.

ABSTRACT:

Introduction

Patient and public involvement (PPI) is considered part of best-practice for health care delivery, research and policy. However, people with dementia are frequently excluded from PPI initiatives. While recent studies have investigated PPI of people with dementia in research, little is known about their involvement at the macro-level of care, that is, in health policy and guideline development. This scoping review maps the evidence on PPI of people with dementia at the macro-level of care, focusing on the methods, outcomes and mechanisms of involvement.

Methods

We systematically searched MEDLINE via PubMed, CINAHL, the Cochrane Library and GeroLit. Additionally, we performed forward and backward citation searching, manually tracked individual references, searched

SUBMITTER: Buhler F 

PROVIDER: S-EPMC11968782 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature