Navigating Life With High-Grade Glioma: Experiences and Needs of Adolescents and Young Adults.

ABSTRACT:

Background

Adolescents and young adults (AYA, 18-39) with high-grade glioma (HGG) face unique challenges at a life stage focused on autonomy, careers, relationships, and family planning.

Aim

This study explores their experiences to inform life-stage appropriate support and resources.

Methods

In this mixed-methods study, we surveyed AYA HGG patients at Princess Margaret Cancer Centre (PM) to assess symptom experiences and care satisfaction. Interviews further explored their illness experiences and needs. Descriptive statistics summarized survey data, and thematic analysis guided by Braun and Clarke's framework identified key interview themes. Triangulation compared survey and interview results for a comprehensive understanding.

Results

Seventeen participants (7

SUBMITTER: Devaraja K 

PROVIDER: S-EPMC11976453 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature