Family perspectives and experiences on implementing telehealth in pediatric palliative care: a qualitative approach.

ABSTRACT: Telehealth is seen as a promising avenue to improve accessibility and quality of pediatric palliative care (PPC) yet engaging users with digital tools (DT) over the long term poses a challenge. Aligning telehealth initiatives with the actual needs and expectations of families is crucial for sustainable care models. To explore family perspectives and experiences with telehealth in PPC, focusing on their needs, perspectives, concerns, and hopes to refine digital care models. This research employed a qualitative methodology, gathering data through a combination of semi-structured interviews and focus group discussions with primary caregivers (PCGs) of PPC patients. PCGs of children utilizing telehealth services in PPC contexts. Interviews with seven individuals and a focus group of eight reve

SUBMITTER: Penarrubia-San-Florencio L 

PROVIDER: S-EPMC11978708 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature