Self-Reported Health Status Survey Creation and Distribution Outcomes in a Large Cohort of Pediatric Oncology Patients Treated with Proton Radiation Therapy.

ABSTRACT:

Purpose

Most pediatric patients receiving radiation therapy at Massachusetts General Hospital are referred from outside institutions and later return to their original care providers. As quaternary care centers, proton therapy centers face unique challenges in tracking patient follow-up, yet obtaining longitudinal data is crucial for assessing radiation therapy outcomes. We implemented an annual direct-to-patient survey to improve follow-up data collection.

Methods and materials

The survey was designed to be completed in <5 minutes and records contact information, health status (recent follow-up and with which specialists, imaging, the status of treated disease/secondary tumors, additional treatments, and symptoms), and social updates. Surveys were sent annually as mailed le

SUBMITTER: Lawell MP 

PROVIDER: S-EPMC11979920 | biostudies-literature | 2025 May

REPOSITORIES: biostudies-literature