Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data.

ABSTRACT:

Purpose

Early onset colorectal cancer (EOCRC) is rising. The profile of health-related quality of life (HRQOL) impacts may differ in this younger cohort. Online forums are a source of unfiltered information regarding patient experience. This study used a qualitative analysis of online forum messages to elicit the unique HRQOL impacts of EOCRC.

Methods

Messages were extracted from an online EOCRC UK forum. Inductive coding (with 10% dual-coding) and thematic analysis were used to describe the impact of diagnosis and treatment on HRQOL.

Results

Data extraction and analyses were performed over one month; 463 messages (dated 01/04/2019 to 31/03/2024) were included. There was 100% concordance on dual-coding for main themes. Eight themes emerged: (1) diagnostic pathway and

SUBMITTER: Spencer A 

PROVIDER: S-EPMC11982157 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature