Consensus-based recommendations for the rehabilitation of children with arthrogryposis multiplex congenita: an integrated knowledge translation approach.

ABSTRACT:

Background

Arthrogryposis multiplex congenita (AMC) is a group of rare disorders characterized by multiple joint contractures present at birth. Early rehabilitation is essential to minimize joint contractures and maximize autonomy and participation among individuals with AMC. However, there is little robust scientific evidence to inform best practice. This project aimed to develop consensus-based recommendations for the rehabilitation management of children with AMC in the following priority areas: early intervention and motor development, muscle and joint function, orthotics, mobility, participation in areas of life, pain, psychosocial wellbeing, and perioperative rehabilitation.

Results

This multi-phase project used an integrated knowledge translation approach. Based on th

SUBMITTER: Dahan-Oliel N 

PROVIDER: S-EPMC11983950 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature