Theory-based and Person-centered Approach to Design a Digital Tool for Improving Lifelong Congenital Heart Disease Care.

ABSTRACT: There is a critical need to support patients with congenital heart disease (CHD), especially during their young adulthood, to help maintain lifelong care with adult CHD specialists. The near ubiquitous use of digital tools, especially among the young adults, offers potential solutions to develop effective, scalable, accessible, and sustainable strategies to support these patients. This study describes the development of a digital tool using the combination of theory-based behavioral analysis, semi-structured interviews with 54 patients and clinicians, and community-based participatory research approaches. Four hopes for the digital tool emerged: easy access to credible resources, uplifting of patient voices, customizing to patient needs, and centering positivity and joy. The digital tool,

SUBMITTER: Agarwal A 

PROVIDER: S-EPMC11998826 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature