Improving Health Care Transition for Young Patients With Sickle Cell Disease Through Quality Network.

ABSTRACT:

Importance

Transitioning from pediatric to adult health care is crucial for the continuity of care for young adults with sickle cell disease. Among 5 pediatric hematology practices participating in the Florida Pediatric Hematology Learning and Action Network, 3 practices lacked transition programs before this quality improvement project.

Objective

To evaluate the implementation of programs to improve care for individuals transitioning from pediatric to adult care for sickle cell disease.

Design, setting, and participants

This multicenter observational quality improvement study was conducted at 5 pediatric hematology centers in Florida. All patients with sickle cell disease ages 14 to 21 years without neurocognitive impairment who attended 1 of the 5 centers over the p

SUBMITTER: Alvarez OA 

PROVIDER: S-EPMC12000992 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature