Assessment of health conditions from patient electronic health record portals vs self-reported questionnaires: an analysis of the INSPIRE study.

ABSTRACT:

Objectives

Direct electronic access to multiple electronic health record (EHR) systems through patient portals offers a novel avenue for decentralized research. Given the critical value of patient characterization, we sought to compare computable evaluation of health conditions from patient-portal EHR against the traditional self-report.

Materials and methods

In the nationwide Innovative Support for Patients with SARS-CoV-2 Infections Registry (INSPIRE) study, which linked self-reported questionnaires with multiplatform patient-portal EHR data, we compared self-reported health conditions across different clinical domains against computable definitions based on diagnosis codes, medications, vital signs, and laboratory testing. We assessed their concordance using Cohen's Kappa

SUBMITTER: Khera R 

PROVIDER: S-EPMC12012333 | biostudies-literature | 2025 May

REPOSITORIES: biostudies-literature