Discussing expected long-term quality of life in the ICU: effect on experiences and outcomes of patients, family, and clinicians-a randomized clinical trial.

ABSTRACT:

Purpose

To evaluate the effect of discussing personalized predictions of long-term quality of life (QoL) on patient and family experiences and outcomes, and on experiences of ICU clinicians.

Methods

We conducted a randomized clinical trial in two Dutch hospitals, assigning adult ICU patients to receive usual care or the intervention: discussing the expected long-term QoL based on a validated prediction model, during a family meeting in the ICU. Primary outcome was patient and family experience with shared decision-making (CollaboRATE, range 0-100), evaluated < 3 days after the family meeting. Secondary outcomes included ICU professionals' experiences (Collaboration and Satisfaction about Care Decisions [CSACD] and Ethical Decision-Making Climate Questionnaire [EDMCQ]), sympt

SUBMITTER: Porter LL 

PROVIDER: S-EPMC12018518 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature