From concept to approval: human genomic data integration with population observational data - insights from a Belgian pilot study.

ABSTRACT: Linking genomic data with population-level observational data sources offers a powerful approach to advance public health genomics research, providing a more comprehensive view of health outcomes by incorporating information on various health determinants. However, integrating data from scattered sources poses significant challenges. Genomic data, with its unique identifying properties and ethical concerns, is particularly sensitive and requires strict security measures and transparent participant communication to ensure confidentiality and maintain public trust. In Belgium, a pilot study has been set up to evaluate genetic and non-genetic health determinants associated with cancer. As a crucial step towards this scientific objective, the study also aims to assess the feasibility and compl

SUBMITTER: Van Goethem N 

PROVIDER: S-EPMC12020153 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature