Employment and work ability in individuals living with rare diseases: a systematic literature review.

ABSTRACT:

Background

The socioeconomic impact of rare diseases has been mostly studied at the macrolevel, but evidence at the microlevel is lacking, which overshadows health-related social inequalities affecting people with rare diseases, namely, health selection effects.

Aim

This study presents an overview of employment and work ability in individuals living with rare diseases, two factors related to health selection effects.

Methods

A systematic literature review was conducted using the PRISMA checklist. Three electronic databases, PubMed, Embase, and Web of Science, were searched from 2013 to 2023. Eligible studies needed to investigate at least one work-related outcome measuring employment or work ability in individuals living with rare diseases and to compare it with a con

SUBMITTER: Bougas N 

PROVIDER: S-EPMC12020228 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature