Patient and Family Perceptions of Real-Time Access to Electronic Health Information: A Social Media Survey.

ABSTRACT:

Objective

 This study seeks to understand pediatric rheumatology patients' and caregivers' utilization and perceptions of immediate access to their electronic health information (EHI) via patient portals.

Methods

 An anonymous, 23-question Qualtrics survey was distributed via social media to patients and families with pediatric rheumatic diseases. The survey link and Quick Response (QR) code were posted on disease-specific Facebook accounts. Descriptive statistics were used with a thematic content analysis performed on free-text responses.

Results

 The survey received 253 eligible responses. Nearly 48% of participants reported accessing their electronic patient portal >12 times in the last year, while only 0.4% (one respondent) reported accessing it zero times and 8%

SUBMITTER: Pinotti CS 

PROVIDER: S-EPMC12020537 | biostudies-literature | 2025 Mar

REPOSITORIES: biostudies-literature