Synergies, Discrepancies, and Action Priorities: A Statewide Engagement Study to Strengthen Clinical Research in Cerebral Palsy.

ABSTRACT:

Background

Cerebral palsy (CP) clinical research is fraught with challenges, in part due to health-related disparities common among people with disabilities. Perspectives of people with lived experience of CP, clinicians and researchers vary on how to address these disparities. The present initiative explores synergies and discrepancies among stakeholders (n = 212) representing these partner groups in perceived barriers and facilitators to high-quality clinical CP research and robust trainee pathways. The overarching goal is to generate priority actions to empower meaningful partner group engagement in CP research and, ultimately, improve health outcomes for people with CP.

Methods

Grounded in empowerment theory, mixed methods needs assessments were conducted separately with

SUBMITTER: Murphy MM 

PROVIDER: S-EPMC12022003 | biostudies-literature | 2025 Jun

REPOSITORIES: biostudies-literature