Advance Care Planning Conversations in Pediatric Patients with Refractory Oncologic Disease.

ABSTRACT: Advance care planning (ACP) involves longitudinal communication between the patient and physician to explore the patient's wishes and goals while relaying accurate diagnostic and prognostic information to support informed and shared medical decision-making. In pediatrics, it also uniquely involves the parents or legal guardians as the primary medical decision-makers. ACP ideally leads to the implementation of advanced directives (ADs) and can be a difficult concept to discuss with pediatric patients and families with refractory oncologic disease, given the distinctive burdens that accompany this population. Many obstacles can delay the initiation of these conversations with these families, although existing literature supports beginning ACP conversations at the time of initial diagnosis an

SUBMITTER: Khan A 

PROVIDER: S-EPMC12026240 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature