Balancing Privacy, Trust, and Equity: Patient Perspectives on Substance Use Disorder Data Sharing.

ABSTRACT:

Background

Sharing substance use disorder (SUD) data is essential for advancing equitable healthcare and improving outcomes for marginalized populations. However, concerns about privacy, stigma, and adherence to data privacy regulations often hinder effective data sharing. This study explores patient preferences and considerations related to sharing SUD-related medical records, with a focus on the sociocultural and systemic factors that shape their willingness to share.

Methods

A total of 357 adult patients from four community-based clinics in Arizona participated in a cross-sectional electronic survey. The survey assessed sociodemographic factors, experiences of stigma (self-directed, anticipated, and provider-based), trust in healthcare providers, satisfaction with care, a

SUBMITTER: Wei M 

PROVIDER: S-EPMC12027209 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature