Co-creation and evaluation of online care maps for children with medical complexity.

ABSTRACT:

Background

Care maps are a caregiver-created diagrammatic tool to support the care of children with medical complexity (CMC). They provide a high-level overview of care, allowing the care team to appreciate the interrelatedness of medical and non-medical aspects of care. Limitations currently exist for the usability, shareability, and integration of care maps into clinical care as they are typically paper-based and caregiver-held. Therefore, the aims of the study were to (1) collaborate with caregivers and care team members (CTMs) of CMC to determine the design requirements and develop an online care map, (2) assess usability, and (3) explore its feasibility and utility from multiple perspectives.

Methods

This mixed methods study utilized an exploratory sequential design. In

SUBMITTER: Adams S 

PROVIDER: S-EPMC12032662 | biostudies-literature | 2025 Apr

REPOSITORIES: biostudies-literature